She Woke Up!

Today, my daughter woke up! Seems to be a pretty normal thing for most kids right? But Lakin was diagnosed one year ago today with Type 1 Diabetes. There is always the danger with diabetics that their sugar goes so low overnight that they go into a coma. So every morning, my first thought, my first prayer is for her to wake up. It's always in the back of my mind, not focused on, but an unwanted, ever present, awareness that this is a horrible possibility.

January 31, 2017 is definitely a day we will never forget but I am not sure how to handle it. How do we acknowledge such a life changing event that wasn't cause for joy? How do we make it special but not weird? Do we celebrate? Throw a party? Ignore it all together?

I definitely don't know how to tread in these unfamiliar waters especially with a seventeen year old, almost adult, young lady. So I took the easy way out...I asked her! Her response was to start her own BLOG!!
Type 1 Of A Kind (https://lakinelise.wixsite.com )  will be launched today and I am amazed at how she is handling the stress of this disease. She has gone from being fearful of joining any club, leading groups, or speaking in public to becoming President of the Yearbook, Co-Leader of Bible Club, a member of Student Council, and educating other classes on Diabetes Care. Gone are the days of innocence where the most major thing she had to worry about was what to wear to school. She cares less about what people think of her and more about just being herself. She takes her faith a little more seriously and has to rely on prayer in a whole new way. She has this confidence that could only come from overcoming a great obstacle and walking through the fire.

As a mom and wife to diabetics, I would not wish this disease on anyone! But sometimes our worst circumstances turn into our greatest accomplishments. Sometimes the very things we feared can push us into doing more than we ever imagined we could do! So to you my precious, precious daughter...DREAM BIG! BE FEARLESS! BE YOU! and never forget you are the daughter of a mighty, mighty King! YOU ARE DEFINITELY ONE OF A KIND!

“I have learned courage is not the absence of fear, but the triumph over it. The brave man is not he who does not feel afraid, but he who conquers that fear.” Nelson Mandela

"....because we know that suffering produces perseverance; perseverance, character; and character, hope." Romans 5:3-4

Mercy Me!

Last night we went to the Mercy Me concert as a family. The kids were not super excited, "Mom, they are like 40 year old men!" I almost gave in and sold their tickets, but I just had a feeling we were supposed to go together. Doubt crept in again as we argued about taking a picture with all of us and everyone was complaining about how hungry they were. As we settled down and the music started, all three seem to be enjoying themselves and at least were nodding their heads. They even got up, clapped their hands, and danced around laughing. Towards the end, I began to worry about the time, how late it was, what our crazy week looked like coming up, and questioned whether we should leave early.

The lead singer, Bart Millard, was talking and letting us know the "curse" of a songwriter was that usually songs were written out of a painful experience he had just gone through. The last one he was introducing was called, "Even If". This song was THE ONE I had been waiting for! We couldn't leave until I heard it! The words have really spoken to me during this whole journey with Lakin. I have wept many times, cried out to God, and worshiped Him while listening to it. 

Bart explained that this song came out of frustration when he knows God can heal, he knows God can fix something...but doesn't. It was written after he had a really bad day, because he just had gotten done at the doctor's office with his son who has Type 1 Diabetes!!! He was upset about how all-encompassing his son's chronic illness is and how it touches every part of their lives. 

Type 1 Diabetes? ARE YOU KIDDING ME? That is what he just came out of his mouth? That song, my song, came from this guy's struggles with his son's T1D? I snapped my head around and looked at Lakin, she said, "Can you believe it?" I leaned over into Bryan's arm and just started sobbing. Not necessarily tears of sadness but overwhelmingly filled with so many emotions. THIS is the reason we are here tonight! We are NOT alone. She is not alone! She had to hear from the stage, surrounded by thousands of other people, that her fight will be alongside MANY others. This disease does not care how much money you have, what color your skin is, how old you are, or who your dad is! It is relentless. But it doesn't mean the God who controls the universe and created you doesn't care or has left you behind. 

Thank you God for reminding me that there are no such things as coincidences and Team Lee was right where they should have been last night!

Even If (parts of) by Mercy Me

"You've been faithful, You've been good

All of my days

Jesus, I will cling to You

Come what may

‘Cause I know You're able

I know You can

I know You're able and I know You can

Save through the fire with Your mighty hand

But even if You don't

My hope is You alone

I know the sorrow, I know the hurt

Would all go away if You'd just say the word

But even if You don't

My hope is You alone

It is well with my soul

It is well, it is well with my soul" 

Hospital Stay

Watching your child lay in a hospital bed hooked up to a mess of wires is beyond hard, unimaginable even. This little human who you vowed to love and protect, since the moment you laid eyes on them, seem to get swallowed up by the white sheets and beeping machines. Nurses and techs come in and out, checking vitals, asking questions, talking medical jargon like we should be on board, all caught up, used to the idea that Lakin has this chronic illness.

I felt beyond hopeless. As her parent, I should be able to fix things, change the outcome, or make it all better! I wanted to jump into the bed, take her place, and yank this awful disease from her. Please God, let it be me! I should be the one! I would trade places with her in a heartbeat!

I had not slept in over 29 hours. I was coming down with a cold. I could not stop crying. I couldn't eat and felt sick to my stomach. I am a big girl and getting food down has never been a problem. But everything tasted like sawdust and was sticking in my throat; I gagged on a simple muffin and a banana. Well-meaning people kept telling me, "Kimberley you are strong, you will get through this, at least you have Bryan, it will get easier, they have made so many medical advances"..........I couldn't clearly hear or process everyone's words. It was as if I was swimming under water. Muffled sounds. It reminded me of Charlie Brown's teacher talking to him, "Wah. Wah. Wah. Wah."

I am not strong! I can't handle this! Not this, not Lakin, not now! I want to wake up and pray this is all a dream, or actually a nightmare. If I close my eyes and then open them again, I will be lying in bed with Bryan, praising Jesus because it wasn't real! It's not real. Right?

After 12 hours in the hospital, I met a nurse with a syringe in her hand, going into Lakin's room. I stop her and ask her what she is doing. She talks to me like you would a 2 year-old, "Ma'am I am giving her insulin." What? What are you taking about? We haven't seen a doctor since we came up from the ER. We haven't heard an official diagnosis from a medical professional or talked about the game plan.

The nurse decides talking S-L-O-W-E-R will help me understand her, "This is her long-lasting insulin which the doctor ordered for us to give her."

"Well, then that doctor can come talk to us and help our daughter understand what is happening rather then walking in here and injecting a drug in her that she is not familiar with. My husband isn't here and I am going to need more information before we take this step. Since I actually know she doesn't HAVE to have it right now, how about we wait! Just because this isn't new to you, this is life-changing for her and us, we are going to need a little bit more understanding and grace from you!"

"So no shot?"
'No! Don't go near her yet. You haven't even checked her sugar in hours. "

An eye roll and a tut later, the nurse backs off and says, "O-K-A-Y....." This would be the beginning of many issues we would have to advocate for our daughter during her stay. Like in any job, there are amazing people and some that should choose a different career field. We had to be constantly aware and vigilant about everything taking place with Lakin's care, even if we were exhausted, sick, and devastated. It was not enough to believe that since we were in a hospital to just let the professionals take care of all the details. Come to find out many mistakes and misunderstandings can take place in this setting.

At night I would lay there listening to Lakin breathe, watching her chest rise and fall. I was fighting to gain perspective and give praise for all the blessings that were still happening in the midst of all the heartache. To be honest, one minute this was easy and the next I was sinking into sorrow! I was all over the place emotionally. I cried out to God, "Lord, I am struggling but thank you that Lakin is alive! Thank you for giving us another day! Thank you that this is not worse and will be something she will be able to 'manage'."

The lead nurse kept asking me if I was ready to give her a shot because Lakin couldn't leave until both parents had shown they could do it without help. I am not scared of shots, needles, or pain for MYSELF!!! When it comes to my children it is a whole different ball game! No, please don't make me push a needle into my daughter. It will make it too real. I waited until the last minute and the nurse congratulated me for being only the 2nd mom to not cry. What she didn't know was that I was all cried out by this time and working on being completely numb to everything. :(

As for Lakin, she went from being terrified of any kind of needles to a little over 12 hours later giving herself her own shots. She was AMAZING, with learning about all her new medications, equipment, and nutrition changes to calculating her carbohydrates and sugar correction ratios. (Lots of math) I saw her pull from strength deep within and process all the information being thrown at her with a dignity and poise far beyond her years. She kept her sense of humor and made jokes at her own expense to help others cope with what was going on. The night she got out of the hospital she went home, took a shower and showed up at her high school basketball game. 

We had over 65 visitors; stop by to give their love and support of her and our family. We were overwhelmed by the generosity, kindness, and prayers of our community. The flowers, balloons socks, coloring books, ice teas, food, phone calls, Facebook posts, smiles, and hugs truly got us through these difficult days. It kept us busy and distracted to not have to focus on the "chronic diagnosis" Never once did we feel we were all alone or not cared about! It was so important to feel connected to our "people" while going through a storm than to drown in isolation.

While I would not wish a hospital stay or illness for any child, we have become closer as a family and a community! When Bryan and I couldn't stand by ourselves our family and friends came and held us up until we could get our legs back underneath us. The prayers have helped shine light and clear away the fog and numbness of our hearts and minds. I also believe without a shadow of doubt that beauty will keep rising out of all these trials. I know that God's glory will reign and that He has a plan for my daughter's life to LIVE BIG!

"Because of our faith, Christ has brought us into this place of undeserved privilege where we now stand, and we confidently and joyfully look forward to sharing God’s glory. We can rejoice, too, when we run into problems and trials, for we know that they help us develop endurance. And endurance develops strength of character, and character strengthens our confident hope of salvation. And this hope will not lead to disappointment. For we know how dearly God loves us, because he has given us the Holy Spirit to fill our hearts with his love." Romans 5:2-5

She Wasn't Even Sick!!

On January 31, 2017 my world stopped turning. Flipped upside down. When I crawled into bed that night hoping to get some sleep, I had no idea that our family's normal would be completely changed a few hours later. We had just returned from dinner, where we actually had a fun time laughing and joking with each other. We came home, did homework, packed lunches, and talked about when Lakin was going to take her driver’s test. At 10:00 PM instead of counting sheep, my husband and I were on our way to the Emergency Room with our sixteen year old daughter. It wasn't because she seemed sick. She didn't have a fever, a stomachache, a cough, bleeding, or anything else you might think would send us out in the middle of the night. 

Everyone keeps asking the question, "How did you guys know?"  Well we didn't, kind of....

A couple of weeks before this, Lakin made the comment after school, "Mom I am so thirsty! I ran out of water at school and my lips are really dry too." I told her to get something to drink and put Aquaphor on, it cures everything.

Nothing should have triggered me. It is completely normal for a teenager to have dry lips and be thirsty, in January, when it is cold outside. She also had just gotten her braces off and was fitted for her retainers. It made sense that adjusting to wearing these were causing these symptoms. But for some reason my heart did a little flip. I looked at her and said in a very casual way, "What if you have diabetes?" She got mad at me of course, like a usual hormonal 16 year old girl. My husband even told me that was not funny. Bad joke.

I felt silly for saying it out loud and had no idea where that thought came from. But I couldn't stop the unsettling feeling that something wasn't right. I decided to watch to see if she got up in the middle of the night to go pee a lot, which is another sign of diabetes. She didn't! Not once. So I chalked it up to being an over-reactive mom with a slight bent towards hypochondria :)

A few days later she went over to a friend's house after school. She said she fell asleep and took a nap. I asked her if she was feeling okay. She said she just felt a little tired and had a headache. But again, she had stayed up late the night before studying for a test and had started her period which always puts her in a whole different category of crazy!

There was an explanation for every symptom and none of these were major enough to set off alarms bells. Mild headache, thirsty after school, and a little more tired and cranky. That describes every teenager I know!

What made us think we should take her to the ER? That night, after we all were tucked in ready to go to bed, Lakin came into our room and bounced on our bed. She looked fine on the outside, cheeks were rosy, and she definitely wasn't "acting" sick. "Hey guys I am really thirsty and really hungry." My first thought was, "Well eat snack, get a drink, and go to bed."

But my stomach dropped. My mind started spinning and retracing the past few weeks, something is not adding up. She just ate a big meal. She shouldn't be hungry. She is thirsty but not peeing more so it doesn't make sense. Denial set in almost immediately. It doesn't seem too abnormal, does it? This isn't what diabetes looks like! She would be sicker right? Lakin hasn't even gone to the regular doctor in over 12 years, she is never ill!

"Lakin, go get your dad's meter we need to check your sugar." I could see it in her eyes. She knew something was off. I started praying or actually begging, "Please God, don't let this be diabetes. Please God, don't let this be true. NOT HER! NOT NOW! NOT EVER! Don't do this...."

Yes, the reason we had a meter at home is because her dad has been a Type 1 diabetic since he was 11 years old. But please don't be tempted to think, "Well they should have been prepared because of Bryan." We were not. When Bryan and I first got together the statistics were less than 12% of him passing it on to any children we might have, if at all. It is an auto-immune disease with no clear answer as to why the body attacks itself. Is it caused by a virus? Genetics? The environment?  She had made it to 16. I thought we were in the clear! 

The first time we checked her sugar Bryan said the meter wasn't working and he had to do it again. I knew, he wasn't telling the truth. I saw his face change slightly with a seriousness and concern. He checked it a second time. The number came back.... it read 472. What does that mean? Well, the normal person's blood sugar is between 70-140. Is there another explanation or reason for having a number this high? No. It is like being pregnant. If the two lines are there, you are pregnant. You can't kind of be. Either you are or you are not. The same with sugars. To read this high you are diabetic. Your body is not producing enough insulin to keep it in check.

With tears in my eyes, I quietly told Lakin she probably had Type 1 diabetes and she needed to go get dressed. We had to go to the ER. We gathered her in our arms to pray for courage and strength to deal with this. I felt time had stopped and went into survival mode. I had to be strong for her but inside I was dying and so confused! What do we do? Who do we call? What is the next step? Why her? Haven’t I given you enough God? My mind scrolled through all the Bible verses I have hidden in my heart over the years, but I couldn't find the comfort I was desperate for! My daughter was just diagnosed with a chronic illness that would affect every part of her for the rest of her life! I didn't want cliches thrown at me no matter how heart felt they were, I was pissed and devastated! Nothing made sense anymore…