I felt beyond hopeless. As her parent, I should be able to fix things, change the outcome, or make it all better! I wanted to jump into the bed, take her place, and yank this awful disease from her. Please God, let it be me! I should be the one! I would trade places with her in a heartbeat!
I had not slept in over 29 hours. I was coming down with a cold. I could not stop crying. I couldn't eat and felt sick to my stomach. I am a big girl and getting food down has never been a problem. But everything tasted like sawdust and was sticking in my throat; I gagged on a simple muffin and a banana. Well-meaning people kept telling me, "Kimberley you are strong, you will get through this, at least you have Bryan, it will get easier, they have made so many medical advances"..........I couldn't clearly hear or process everyone's words. It was as if I was swimming under water. Muffled sounds. It reminded me of Charlie Brown's teacher talking to him, "Wah. Wah. Wah. Wah."
I am not strong! I can't handle this! Not this, not Lakin, not now! I want to wake up and pray this is all a dream, or actually a nightmare. If I close my eyes and then open them again, I will be lying in bed with Bryan, praising Jesus because it wasn't real! It's not real. Right?
After 12 hours in the hospital, I met a nurse with a syringe in her hand, going into Lakin's room. I stop her and ask her what she is doing. She talks to me like you would a 2 year-old, "Ma'am I am giving her insulin." What? What are you taking about? We haven't seen a doctor since we came up from the ER. We haven't heard an official diagnosis from a medical professional or talked about the game plan.
The nurse decides talking S-L-O-W-E-R will help me understand her, "This is her long-lasting insulin which the doctor ordered for us to give her."
"Well, then that doctor can come talk to us and help our daughter understand what is happening rather then walking in here and injecting a drug in her that she is not familiar with. My husband isn't here and I am going to need more information before we take this step. Since I actually know she doesn't HAVE to have it right now, how about we wait! Just because this isn't new to you, this is life-changing for her and us, we are going to need a little bit more understanding and grace from you!"
"So no shot?"
'No! Don't go near her yet. You haven't even checked her sugar in hours. "
An eye roll and a tut later, the nurse backs off and says, "O-K-A-Y....." This would be the beginning of many issues we would have to advocate for our daughter during her stay. Like in any job, there are amazing people and some that should choose a different career field. We had to be constantly aware and vigilant about everything taking place with Lakin's care, even if we were exhausted, sick, and devastated. It was not enough to believe that since we were in a hospital to just let the professionals take care of all the details. Come to find out many mistakes and misunderstandings can take place in this setting.
At night I would lay there listening to Lakin breathe, watching her chest rise and fall. I was fighting to gain perspective and give praise for all the blessings that were still happening in the midst of all the heartache. To be honest, one minute this was easy and the next I was sinking into sorrow! I was all over the place emotionally. I cried out to God, "Lord, I am struggling but thank you that Lakin is alive! Thank you for giving us another day! Thank you that this is not worse and will be something she will be able to 'manage'."
The lead nurse kept asking me if I was ready to give her a shot because Lakin couldn't leave until both parents had shown they could do it without help. I am not scared of shots, needles, or pain for MYSELF!!! When it comes to my children it is a whole different ball game! No, please don't make me push a needle into my daughter. It will make it too real. I waited until the last minute and the nurse congratulated me for being only the 2nd mom to not cry. What she didn't know was that I was all cried out by this time and working on being completely numb to everything. :(
As for Lakin, she went from being terrified of any kind of needles to a little over 12 hours later giving herself her own shots. She was AMAZING, with learning about all her new medications, equipment, and nutrition changes to calculating her carbohydrates and sugar correction ratios. (Lots of math) I saw her pull from strength deep within and process all the information being thrown at her with a dignity and poise far beyond her years. She kept her sense of humor and made jokes at her own expense to help others cope with what was going on. The night she got out of the hospital she went home, took a shower and showed up at her high school basketball game.
We had over 65 visitors; stop by to give their love and support of her and our family. We were overwhelmed by the generosity, kindness, and prayers of our community. The flowers, balloons socks, coloring books, ice teas, food, phone calls, Facebook posts, smiles, and hugs truly got us through these difficult days. It kept us busy and distracted to not have to focus on the "chronic diagnosis" Never once did we feel we were all alone or not cared about! It was so important to feel connected to our "people" while going through a storm than to drown in isolation.
While I would not wish a hospital stay or illness for any child, we have become closer as a family and a community! When Bryan and I couldn't stand by ourselves our family and friends came and held us up until we could get our legs back underneath us. The prayers have helped shine light and clear away the fog and numbness of our hearts and minds. I also believe without a shadow of doubt that beauty will keep rising out of all these trials. I know that God's glory will reign and that He has a plan for my daughter's life to LIVE BIG!
"Because of our faith, Christ has brought us into this place of undeserved privilege where we now stand, and we confidently and joyfully look forward to sharing God’s glory. We can rejoice, too, when we run into problems and trials, for we know that they help us develop endurance. And endurance develops strength of character, and character strengthens our confident hope of salvation. And this hope will not lead to disappointment. For we know how dearly God loves us, because he has given us the Holy Spirit to fill our hearts with his love." Romans 5:2-5
0 comments:
Post a Comment