Lawson's Journey-May 2017

 I have put off writing this post. I feel if I put it down on paper it will become more real. It seems easier if I just go into survival mode, put blinders on, and press on. Denial can be so strong. Dealing with truth of any kind is painful and exhausting. After endless years of unexplained sickness, allergies, asthma, chronic stomachaches, and numerous tests, Lawson was diagnosed in June with Celiac. Again our world was topsy-turvy, with another life-changing autoimmune disease.  Our lives had to stop, re-calibrate, as we researched and learned about a whole different set of issues other than our daughter's Type 1 Diabetes. I have heard so many people make comments on this whole "Gluten" thing. "It's a phase. It is just a way to spend more money on expensive foods. It's the latest fad. It wasn't around 20 years ago, so I don't believe it. How serious can it really be?" 

The doctor spoke slowly so I could digest it all, "Kimberley, Lawson's intestinal wall is very damaged because he highly allergic to gluten. Every time he eats it, his immune system mounts an attack on this part of his body. Left untreated, Celiac disease can lead to additional serious health problems, like Type I diabetes, multiple sclerosis (MS), anemia, osteoporosis, infertility and miscarriage, neurological conditions like epilepsy and migraines, short stature, and intestinal cancers. There is no cure except total elimination of all gluten from his diet, which is found in many foods, drinks, spices, medicines, and other products. He needs separate dishes, utensils, toaster, and other appliances need to be monitored for cross contamination. 1/50th of a crumb can harm him and cause a reaction. Eating out will be a problem because there are many places who offer gluten free items but they are touched by other gluten containing foods or workers who don't change their gloves. He will have to be very, very careful. There are few APPS that you can download that might help."

WTH???? That was the response in my head. Why didn't the other doctor tell us this 2 years ago? I specifically asked! "Apparently not enough biopsies were taken from his intestines. The damage can be spotty at first so at least 6 sections need to be sampled to get an accurate diagnosis." Seriously!

New toaster? 1/50th of a crumb? Eating out is our way of life! Cross contamination sounds like a science experiment? Did I mention we always eat out? An app? Are you kidding me? No medicine to make it go away? Total elimination? That sounds impossible! I was trying, but failing, to process all this information. It was like a fire hydrant of facts, opened full throttle, and aimed right at my brain. 

Deep breath! Pray! Repeat! Deep breath! Pray! Repeat!

"God, need you here, before I go into full freak out mode! Kind of overwhelmed at this moment. Feeling like a failure for not doing enough before this. Don't think I can handle ONE MORE THING with my kids! Are you kidding me?"

"Kimberley, calm down. Dig deep. I am here. Lawson is mine. I have a plan for his life. You have to trust me in the storms. You can DO THIS! Not because you are strong, but because my power is made perfect in your weakness. You need to lean on me, when you don't understand or grow weary. Sing my praises and know without a shadow of a doubt, that I have your son's name written on the palm of my hand."

"Enter his gates with thanksgiving and his courts with praise; give thanks to him and praise his name. For the Lord is good and his love endures forever; his faithfulness continues through all generations." Psalms 100:4-5